Thursday, March 8, 2018

Upcoming Lyme Conference for Patients in N. Cal

MyLymeData2018: Seeking Cures Together

San Ramon, CA April 7, 1-5 pm


Award-winning investigative journalist Mary Beth Pfeiffer will discuss her new book, Lyme: The First Epidemic of Climate Change.

When you register, you have the option of pre-ordering a copy of her book. It will be delivered to you when you arrive at the conference, so you'll have the opportunity to have it signed by the author.'s Lorraine Johnson will present the latest results from MyLymeData's 10,000 participants, along with a preview of what's next for this important research project.

Dr. Ray Stricker will walk us through many of the new tests for diagnosing Lyme disease that are now on the horizon.

Dr. Christine Green will offer insights into pain-related issues in Lyme disease, along with how to cope with Herxheimer reactions.

For more information:

This event is always good, and comfortable setting, too. A good place to meet other Lyme patients and to hear about the latest in Lyme diagnosis and treatment. I encourage everyone to attend. Bring friends and family, too, especially if they are dubious about your diagnosis and treatment. It is very edcational. 


Monday, February 26, 2018

Find a Lyme doctor, and latest updates in the 'Lyme wars' between ILADS and IDSA

I noticed some news posts on and thought I should mention them and send everyone a link:

Among other things, there is a Lyme symptom checker, an update to a New York TV station's series called "The Lyme Wars" that first aired Oct of 2017, and a list of Lyme-Literate-Medical-Doctors (LLMDs) on the page. 


Wednesday, February 14, 2018

Oxford Diagnostics Laboratories Imugen test for Lyme and Co-Infections

The company has lots of websites.

Over 25 years ago, a small team of Massachusetts Department of Public Health State Laboratory employees, working alongside leading clinicians in the emerging area of Lyme disease, recognized that the diagnostic tools available to physicians and laboratories were limited. This motivated team knew patients deserved better and in 1989 founded Imugen. The roots of Imugen began in providing fast, trusted and accessible testing for evidence of Borrelia burgdorferi infection, the infection that causes Lyme disease. Over time, these founding principles have been applied to other tick-borne infections and have grown to represent a menu of Imugen testing services.

Innovation remains embedded in Imugen's testing services, with progressive PCR and serology test offerings. This comprehensive testing including PCR and serology may offer a greater opportunity to detect evidence of tick-borne infection.* Other innovations include a robust, internal database of infection positivity rates by region, the identification of Borrelia miyamotoi infection in the first clinical case in the United States in 2012 and, most recently, the completion of a three-year clinical trial to evaluate a testing algorithm for detecting Babesia microti in donated blood.

In 2016, Imugen became part of the Oxford Immunotec family through an acquisition. Testing services are being expanded beyond the Northeast to provide clinicians across the United States with comprehensive testing solutions for tick-borne infections.

Clinical Trial:    (See contact people at the end of the page noting its immunotec)

Oxford Immunotec Announces Update in Patent Infringement Litigation

"While we are disappointed that the court did not grant a preliminary injunction prohibiting the sale of Qiagen's QFT-Plus product in the U.S. before trial, we are encouraged by the court's rulings on the issues of validity and obviousness," said Dr. Peter Wrighton-Smith, Chief Executive Officer of Oxford Immunotec. "We continue to look forward to the further defense of our patents at the upcoming trial in January."

Oxford Immunotec and QIAGEN N.V. Settle Patent Infringement Lawsuit

Thursday, February 1, 2018

Blood test finds toxic Alzheimer's proteins

This is big deal! Apparently there is a new technique for diagnosing Alzheimer's disease years before symptoms such as memory loss and dementia manifest.


Blood test finds toxic Alzheimer's proteins -

Tuesday, January 23, 2018

Researchers are worried that a brain illness known as 'zombie deer' disease may start infecting humans

Canadian researchers are concerned the disease could potentially start to infect humans who eat deer, elk, moose, or other members of the animal family that carry misfolded proteins.


Sunday, January 21, 2018

Class-action suit against the French government filed by Lyme patients

IN FRANCE – 300 people with Lyme disease will file criminal complaints in early January 2018 against the State, the National Agency 

for the Safety of Medicines and Health Products (ANSM) and the National Reference Center (CNR) in Strasbourg for influence peddling, 

abuse of company or government assets, concealment of abuse of government or company assets,endangering the lives of others, 

violation of the principle of independence of experts and conflict of interests.

This complaint aims in particular "to uncover the links of interests maintained between the National Reference Center of Strasbourg and the laboratories". The complainants believe that screening tests are unreliable.


The director of the CNR, is an expert mandated by the State and the ANSM, who also collaborates with the laboratories that manufacture these tests and participates in the validation committees of the tests. He may be charged with criminal offense, influence peddling, corruption and misuse of corporate assets. 


The plaintiffs also target the State and the ANSM for endangering the lives of others and manslaughter (patient suicides) and also lack of vigilance in the choice of experts and the quality of tests.


According to one of the plaintiffs' lawyers, by imposing a single testing technique, a single screening protocol and favoring a certain number of laboratories, the health authorities "did not play their role of supervisory or regulatory authority, but actually became employees of the pharmaceutical industry."


Today there are tens of thousands of patients who have not been diagnosed and many of them are in absolutely catastrophic medical, material and moral situations. 


The lawyers claim the responsibility of the actors of public health, but also  $611,345.00  of damages per patient. 


"Absurd" tests:  Today, the Elisa test is used to find out if a patient has Lyme disease. Elisa is the only test that exists in France to detect the disease. If it is negative, the exams stop there for the patient. If it is positive, the doctors give a second test to the patient, much more precise, the Western Blot. Except that the first test detects only 3 to 5 different bacteria that can cause Lyme, whereas in reality, there are more than ten. To find out if they have Lyme or not, some patients have to go to veterinary tests, much more accurate, or go to other countries like Germany, where the tests are more advanced.


Some doctors do not stop at the negative test and continue to see patients to determine if they have Lyme or not, but they are then sued by the College of Physicians and Health Insurance for 'non-compliance'. The lawyers therefore ask for the withdrawal of these tests that they consider "absurd".

Monday, January 8, 2018

The antioxidant Ebselen prevents neurotoxicity

The antioxidant Ebselen prevents neurotoxicity and clinical symptoms in a primate model of Parkinson's disease. - PubMed - NCBI

This looks promising. 


Thursday, January 4, 2018

Weird EYE problems related to Lyme and Bartonella infection

Some of the "Weird" Eye Problems 
Associated With Lyme Disease & Bartonella

Lyme patients (approximately 5% +/-) often describe symptoms related to their vision that are dismissed or misdiagnosed by eye doctors not trained to recognize these problems.  A pat on the head, ignoring your questions, a rolling of their eyes, or a declaration of "all is well" when you know it isn't will let you know they don't know.  

If the symptoms or patient's problems are acknowledged they are often reported to be related to something other than an infection related to Lyme disease.  To note, Bartonella is sometimes the cause of "weird" eye symptoms too.  

If you experience any "weird" eye/brain symptoms you should see your local eye doctor.  If, after the typical causes for these various symptoms have been ruled out, there doesn't appear to be an explanation for the mild to severe visual disturbances you are experiencing, you are not alone and there is still hope.

These "weird" eye/brain symptoms, some of them described below, can best be addressed by treating the Lyme related infections that cause eye/brain problems such as meningitis, encephalitis, brain swelling, optic nerve damage, toxins, etc.

See the rest of the page at this site: