Not sure why I'm down to 124. Possibly because shopping is difficult since the back pain and perhaps the antibiotics and/or Lyme have messed with my absorption. I started taking digestive enzymes a couple of weeks ago. Normal weight for me is 135-140.
Wednesday, September 7, 2011
Continuing to Lose Weight
Not sure why I'm down to 124. Possibly because shopping is difficult since the back pain and perhaps the antibiotics and/or Lyme have messed with my absorption. I started taking digestive enzymes a couple of weeks ago. Normal weight for me is 135-140.
Labels:
Lyme disease
Monday, September 5, 2011
Lyme study needs subjects
This email is to let you know about a Lyme Disease research project going on the the San Francisco Bay Area that needs more Lyme patients as participants. Many of our established members have already heard about this already, but we've had a lot of new people sign up recently who might be good candidates.
The study is being conducted by a health care practitioner who treats Lyme patients in the bay area. She's teamed up with some researchers at Stanford University to conduct a study examining the accuracy of various Lyme Disease tests. This is a Lyme-Literate and CALDA sponsored study. The results will benefit all Lyme patients.
To see if you qualify for the study and to sign up, please see the instructions on the study recruitment flyer, found in the files section of the LEAPS meetup website:
http://bit.ly/n9K
I recenly heard from the investigators they're almost done with the study, they just need a few more people, so please pass this on to everyone you know!
The study is being conducted by a health care practitioner who treats Lyme patients in the bay area. She's teamed up with some researchers at Stanford University to conduct a study examining the accuracy of various Lyme Disease tests. This is a Lyme-Literate and CALDA sponsored study. The results will benefit all Lyme patients.
To see if you qualify for the study and to sign up, please see the instructions on the study recruitment flyer, found in the files section of the LEAPS meetup website:
http://bit.ly/n9K
I recenly heard from the investigators they're almost done with the study, they just need a few more people, so please pass this on to everyone you know!
Labels:
Lyme disease
Friday, September 2, 2011
My latest commentary about computers. The Desktop is Dead.
Well, I've been using an iPhone and iPad most exclusively for my computing needs for the last six months or so. This is probably because I have been mostly incapable of sitting in the chair for any length of time due to the various symptoms. But it's also because I have become fond of these devices. I can take them wherever I want, whether walking around, lying down in bed or sitting in a comfy chair, etc. Makes computing so much easier.
In any case, tonight I had a project to do which consisted of consolidating a bunch of e-mails on my desktop iMac and creating a chart out of them in Microsoft Word. It should have been a very simple project. Should not be difficult, right? Well, it took me about two hours to do it. Unbelievable.
I had not used my new fancy iMac for about two weeks. I am running Parallels with Windows 7, running under OS X. The computer has been mostly in sleep mode over the past few weeks but it had been 'on' some of the time, so conceivably it could have updated itself and been ready to roll. In any case, I powered it up and sat down ready to do some quick work on it and get to bed at a timely hour. Whether it is the electronic goblins, the Muses who are working their wiles against me, or just a ridiculous state of complexity of microcomputers, I don't know, but the stark contrast to the ease with which iOS devices (the iPad in the iPhone) work became so obvious to me that I almost pulled my hair out and threw my computer, as brand-new and shiny as it is, out the window.
Now admittedly, I am dealing with a pinched nerve in my neck and it's giving me major back pain so I am not a particularly happy camper, and I have this incredible tremor from the Parkinson's disease or whatever. So I am not long on patience right now. But still, I am a clever guy, and I know how to get around computers and have written many books about them over the years. So usually I can just skin a cat one way or the other and do the 'computer whisperer' thing, and get stuff to work.
Suffice it to say I had about 20 dialog boxes come up over the course of the time I was working, maybe more. Did I want to update iTunes? How about security updates for OS X. Did I want to? Windows had some updates to do, too. Ad-Aware needed urgently to update. The computer slowed to a crawl a few times with the hard drive getting continuous disc hits, and the CPU pegged despite the fact that I was intentionally doing next to nothing. I had to close all the browser windows I had open and methodically shut down all kinds of stuff like the Apple Mail program and Outlook in order to get the CPU out of the gutter. I eventually just decided to shut down the Windows 7 virtual machine and Parallels, then reboot OS X. So, I had to reboot two operating systems which took another about 15 minutes to do. This was in part because various programs failed to shut down even though I told the operating systems to shut down. And it wasn't just Windows, it was also OS X, too. Mail would not shut down, for example, so I had to force quit it.
After rebooting, the scanner that I was trying to use with Paperport could not be found. In an hour's worth of trying to reconnect it through software and hardware tricks, I did not succeed. I tried another scanner. That didn't work either. Flash wanted to be updated, Java wanted to be updated. The NTFS driver that I have for Mac OS X so I can use my external hard drive timed out and needed to be repurchased. Many another dialog boxes and error messages, things not found, and so forth presented themselves from time to time.
Next, I realized how frustrating it is to actually work with the mouse. I have both a mouse and the magic trackpad connected to the iMac. But with the 27-inch screen on the iMac, getting from one corner to the other corner really takes some hand work. I had to close programs and aim at the little red X or the little red dot in the corner of the application window. Numerous times I missed. Or, I was trying to select a bunch of text and then had to right click on it or remember the right keyboard control sequence for a copy and paste, which happens to be different between Windows and OS X. So I was busy navigating between apps, with a lot of dexterity required. I overshot a few times and application documents disappeared, and so forth. You know, the usual.
Geeze, all I wanted to do was copy some text from some e-mails and put them in another e-mail or in a Word document so I can send it to somebody.
Once I saved the document, it went into some remote folder somewhere, so that I had to navigate to that. Then right click on it and choose Send to > Mail recipient, and then that opened up Word to create a new mail document, and then I had to navigate my recipient list, and so forth. Eventually after rooting around for a while, I got the e-mail sent. The entire endeavor took about two hours. It was excruciating.
I was just saying to a friend today that computers are like relationships: If you have too many of them around you're really asking for trouble. They all take maintenance. I suggest that if you are considering having more than one computer in your life, forget about it. Each one takes so much maintenance that it's not worth having more than one. And once you become familiar with one operating system or one set of applications or one interface or one keyboard or whatever, switching between them is too much mental overhead.
Desktop personal computers are just too damn complicated. Period. I was more than happy to get back to my iPad so I could dictate this rant. Sure, it takes several steps, dictating into Dragon, and double clicking the Home button to switch back and forth between that and BlogPress, but big deal. It's not too difficult, and it actually works.
As much as I hate the idea of having everything on 'the Cloud', and losing control over my data, where it is, who's looking at it, and losing control over my applications, I have to say that it's probably going to be a giant breakthrough when we no longer have to maintain, update, replace, repurchase, purchase new, or whatever all of our applications, all of the time. Updating our operating systems, our virus protection programs, our various other malware protection programs is a gigantic pain in the butt.
Viva le tablet and le Cloud!
Comments?
Labels:
Computers
Sunday, August 28, 2011
International Criteria for Myalgic Encephalomyelitis
Many Lyme sufferers were first diagnosed with Chronic Fatigue Immune Dysfunction (CFIDS/CFS), now called Myalgic Encephalomyelitis (ME). Here is a link to the new International Criteria. It may help some people with their disability and Social Security claims.
http://niceguidelines.files.wordpress.com/2011/07/myalgic-encephalomyeli\
tis-international-consensus-criteria.pdf
Scroll to the bottom "Table 1" for the meat and potatoes. There is also an article about it in ProHealth.com library. When struggling with doctors who tune out at the mention of Lyme, this might be a way to get much needed help.
http://niceguidelines.files.wordpress.com/2011/07/myalgic-encephalomyeli\
tis-international-consensus-criteria.pdf
Scroll to the bottom "Table 1" for the meat and potatoes. There is also an article about it in ProHealth.com library. When struggling with doctors who tune out at the mention of Lyme, this might be a way to get much needed help.
Labels:
General Health,
Lyme disease,
Medical Insurance
Saturday, August 27, 2011
New Lyme Testing Lab
There is a new Lab I've discovered in Lubbock Texas, called Spiro Stat. They've been around for two years and test for 35 different co-infections and their various species.
Pathogen Information:
The following organisms can be detected and identified using the test panels offered by Spiro Stat Technologies.
Anaplasma
phagocytophilum
Borrelia afzelii
Babesia microti
Bartonella henselae
Borrelia burgdorferi
Borrelia garinii
Borrelia hermsii
Borrelia lonestari
Borrelia parkeri
Borrelia valasiana
Brachyspira aalborgi
Bracyspira hyodysenteriae
Coxiella burnetti
Ehrlichia chaffeensis
Ehrlichia ewingii
Francisella tularensis
Mycoplasma fermentans
Rickettsia spp (9 species)
Treponema carateum
Treponema denticola
Treponema pallidum
Treponema pertenue
They also test for Babesia and fungi.
Spiro Stat uses modern molecular diagnostic approaches that have been validated under stringent criteria. All laboratory testing is performed in association with a CAP accredited CLIA laboratory, Southwest Regional PCR.
For pricing, see:
http://www.spirostat.com/
Labels:
Lyme disease
Thursday, August 25, 2011
Monday, August 22, 2011
Nerve disease cell repair 'flaw'
I saw this story on the BBC News today about ALS and possible PD implications.
A breakdown of a recycling system in cells appears to be the underlying cause of a fatal nerve disease.
< http://www.bbc.co.uk/news/health-14591364 >
A breakdown of a recycling system in cells appears to be the underlying cause of a fatal nerve disease.
< http://www.bbc.co.uk/news/health-14591364 >
Labels:
ALS,
Parkinson's disease,
PD
Sunday, August 21, 2011
Enzymes Special Report
Interesting article about digestive and systemic enzymes, and their role in treating inflammatory diseases.
http://articles.mercola.com/sites/articles/archive/2011/08/21/enzymes-special-report.aspx?e_cid=20110821_SNL_Art_1
http://articles.mercola.com/sites/articles/archive/2011/08/21/enzymes-special-report.aspx?e_cid=20110821_SNL_Art_1
Labels:
enzymes,
Inflammation,
Lyme disease
Friday, August 19, 2011
Dr. Dietrich Klinghardt on Lyme Disease
Dr. Mercola posted a big article on Lyme today. Mostly, it's about Dr. Klinghardt's approaches to treatment, but there's also some other general Lyme info as well. There's a long video with Dr. Klinghardt on it, too.
http://articles.mercola.com/sites/articles/archive/2011/08/27/dr-dietrich-klinghardt-on-lyme-disease.aspx?e_cid=20110820_DNL_artTest_B1
http://articles.mercola.com/sites/articles/archive/2011/08/27/dr-dietrich-klinghardt-on-lyme-disease.aspx?e_cid=20110820_DNL_artTest_B1
Labels:
Lyme disease,
Lyme disease testing
Wednesday, August 17, 2011
Personal Update 8-17-11
Letter to my LLMD today:
Thought I should report to you that I am in major pain. Like number 10 on a scale of 10 in my shoulder, the shoulder on the side where I have the stiffness and tremors. Also pain has increased in the rt arm, which is much stiffer than before.
To treat the back, I've been to the chiropractor twice and the Feldenkrais practitioner once, and then to my GP yesterday, all for nought, thus far. The pain is between the rt shoulder blade and the spine. This has been going on for over one week now. Everyone seems to think it's a spasm in a muscle, resulting from a strain. But I think it's the parkinsonism which is stiffening the shoulder as well as the arm at this point. What muscle wouldn't freak out from being contracted all day?
I'm taking ibuprofen a lot and also hydrocodone apap 5 500 that Dr Kurn (PD doc) prescribed a while back. But I am pretty incapacitated and the pain is really terrible. Some relief from resting shoulder on a heating pad in bed. If I do anything more than that with the arm I'm in trouble.
I'm not sure what to do about the IVs. I don't know if this has been getting worse because of die off/Herx/oxidative damage from doing so many antibiotics and antiviral antifungal stuff all at the same time (remember, I am doing IV ceftriaxone, IV Flagyl, azithromycin, valacyclovir, and Mepron all at once). I stopped everything yesterday. Nothing has gotten better so far. It's about the same if not worse. The foot tremors are also nonstop.
The pain from the shoulder is radiating down the arm and up the neck a bit. My GP, Nicola Hanchock, ruled out nerve compression yesterday. We are trying to get me into an appointment with the Parkinson's doc Matthew Arnold here in Berkeley to see what he has to say, bcuz it seems as though the parkinsonism has progressed rapidly.
I just ran out of IV Wellness glutathione but I reordered some and I should have it in a couple of days. Other Parkinson's symptoms such as loss of balance, difficulty initiating movement and so forth have also increased pretty quickly. It's rather frightening, but mostly the pain is what is getting to me. Maybe we should have a phone conversation.
The old chest rash around the port has revisited but is about a 2 on a scale of 10. And my swollen red earlobes thing has happened again. Skin is now peeling off them, the swelling lasted 5 days. Now waning. Still swollen and red but less so.
Bob
I'm not sure what to do about the IVs. I don't know if this has been getting worse because of die off/Herx/oxidative damage from doing so many antibiotics and antiviral antifungal stuff all at the same time (remember, I am doing IV ceftriaxone, IV Flagyl, azithromycin, valacyclovir, and Mepron all at once). I stopped everything yesterday. Nothing has gotten better so far. It's about the same if not worse. The foot tremors are also nonstop.
The pain from the shoulder is radiating down the arm and up the neck a bit. My GP, Nicola Hanchock, ruled out nerve compression yesterday. We are trying to get me into an appointment with the Parkinson's doc Matthew Arnold here in Berkeley to see what he has to say, bcuz it seems as though the parkinsonism has progressed rapidly.
I just ran out of IV Wellness glutathione but I reordered some and I should have it in a couple of days. Other Parkinson's symptoms such as loss of balance, difficulty initiating movement and so forth have also increased pretty quickly. It's rather frightening, but mostly the pain is what is getting to me. Maybe we should have a phone conversation.
The old chest rash around the port has revisited but is about a 2 on a scale of 10. And my swollen red earlobes thing has happened again. Skin is now peeling off them, the swelling lasted 5 days. Now waning. Still swollen and red but less so.
Bob
Labels:
Personal check-in
Subscribe to:
Posts (Atom)