http://www.counsellingme.com/microscopy/MeetingMicroscopy.html
Here's some more information about the actual meeting and who was in attendance, etc.
There are many important scientific presentations archived on this site:
Meeting for Lyme Borreliosis Patients with Public Health
http://www.counsellingme.com/ParliamentaryLymeMeeting/MeetingIntroduction.html
Concise Summary of the Meeting
On 19th January 2015 a large group of patients and families converged on Meeting Room 14 in the
On the government panel were:
Tim Brooks, Head of Rare and Imported Pathogens Laboratory, PHE
Amanda Semper, Scientific Program Manager, Rare and Imported Pathogens Laboratory, PHE
Ailsa Wight, Deputy Director Infectious Diseases and Blood Policy Branch, Department of Health Public Health Directorate
Simon Hughes introduced the meeting and then handed over to the Countess of Mar to chair.
The Countess of Mar opened with a speech that showed how clearly she understands and sympathises with the issues of Lyme Disease. She talked about scientific method, referring to the history of Galileo, and the need always to reconstruct theories in the light of evidence. Microscopy was where the science started and microscopy and culture are the way forward now. She told of the attitudes to Lyme now, the discounting of it as "fashionable", the way sero-negative patients are always denied diagnosis, and the lack of credibility of the low UK Lyme figures compared to the much higher, and climbing, figures elsewhere in the world.
Armin Schwarzbach MD PhD (specialist for laboratory medicine and infectious diseases from
http://mic.sgmjournals.org/content/early/2015/01/05/mic.0.000027.short
Dr Schwarzbach then discussed the early and later responses of the body to Lyme infection, sharing information well-accepted by Lyme doctors and patients. A discussion of some of the testing difficulties and inter-test disagreements followed - negative ELISAs giving positive immunoblots, low test sensitivity, the problem of false negatives, the difficulties of the persistent IgM response which confuses non-experts, and the difficulty of finding Lyme in the CSF (cerebrospinal fluid).
More generally, but still important, he noted that although Lyme symptoms can appear unspecific, the combination or pattern of symptoms is very diagnostic. However this takes time (at least an hour) to draw out of a consultation. Tests on the cellular immune response, eg LTT and Elispot, are better than looking for antibodies, but NO illness can be ruled out solely by lab tests. He talked about the involvement of Borrelia in the wide variety of damaging and economically important diseases with which we are familiar, Alzheimer's, where the plaques can be Borrelia biofilms, Autism, MS etc, emphasized that treatment must always be continued until symptoms are controlled, and then compared in detail the contrasting attitudes of the CDC and "other" clinicians and scientists to Lyme Disease and its treatment.
He left us with a list of proposals that in his view are necessary before the
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