Here's some very informative and detailed background on the status of Lyme research and funding at the US federal level. I found the video here to be educational in terms of how bills are introduced into Congress. ALso, the 5 minute talk by LDA (Lyme Disease Association) President Pat Smith is chock full of alarming factoids on number of pathogens in ticks, the impact on families, societal cost of chronic Lyme, etc.
 Congressman Joe Pitts (PA)The Lyme Disease Association, Inc. (LDA) announced that the House Committee on Energy and Commerce, Subcommittee on Health held a hearing to include tick-borne diseases legislation (HR 610) at 2 PM, Wednesday, November 20, 2013 in 2123 Rayburn House Office Building, Washington, DC. Congressman Joseph Pitts (PA) chaired the hearing. The hearing webcast is available at http://energycommerce.house.gov/.
LDA President Pat Smith testiied on HR 610, discussing the serious and growing threat of Lyme and other tick-borne diseases (TBD), the dire effects on patients, many of whom are children, and the economic impacts and the need for a patient voice in the process. (written testimony / oral testimony)
(20 years of advocacy in Congress - check out Pat Smith's Testimony from the 1993 Senator Kennedy Lyme Hearing) |
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