Letter to Senators Blumenthal and Gipson

Here is a letter from Carl Tuttle who is a Lyme activist based in New Hampshire. He sent this to two politicians who are very supportive of the chronic Lyme community. As you may recall, Richard Blumenthal was the Atty. Gen. of the state of Connecticut whose antitrust investigation uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA agreed to reassess them with the assistance of an outside arbiter. 

Unfortunately, the results were less than spectacular with the IDSA group not exactly following instructions laid down by Blumenthal et al. If you're interested in reading a little bit about that, here is the link:
http://www.ct.gov/ag/cwp/view.asp?a=2795&q=414284

Blumenthal subsequently ran for US Senate and won. He is now in Washington DC where we hope he'll have even more influence as a US Senator. Terry Gipson is a New York State senator (D)  representing the 41st senate district of New York. Here's his web page:

http://www.nysenate.gov/senator/terry-gipson

May 13, 2014

Dear Senators Gipson and Blumenthal,

I would like to call attention to the following Health and Human Services Webinar regarding the state of research on the persistence of Borrelia burgdorferi (Lyme disease spirochete) scheduled for May 22nd at 1:00PM.

http://www.cdc.gov/lyme/resources/May2014_HHS_Lyme_Disease_webinar_mazarin_508.pdf

The anticipated CDC conclusion to this webinar will most likely claim that the Embers study involved primates so results don't prove persistent infection in humans and the Marques xenodiagnosis study recovered Lyme from a single Post Treatment Lyme Disease Syndrome patient so more studies are needed before reaching a conclusion.

Pathologist Dr Alan MacDonald has compiled a list of 123 autopsy cases of Lyme borreliosis. The autopsy proves as no other evidence can that chronic Lyme Borreliosis in the human host is a reality, causing enormous disabilities, patient suffering, and life altering changes.

Chronic Lyme Borreliosis in the Human host: Autopsy Evidence from 123 peer reviewed published Autopsies:

Http://vimeo.com/93726874

In addition to Dr MacDonald's evidence of chronic Lyme disease from peer reviewed studies here are some additional studies to consider:

Persistent Lyme infection: 273 Peer-Reviewed Studies
http://home.comcast.net/~runagain/Persistence%20of%20Lyme%20Disease.doc

Congenital Transmission of Lyme: 28 Peer-Reviewed Studies
http://home.comcast.net/~runagain/Congenital%20Transmission%20of%20Lyme.doc

Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies
http://www.lymeinfo.net/medical/LDSeronegativity.pdf

We see the Health and Human Services Webinar as a continuation of the CDC's denial of chronic Lyme so as not to hinder an ongoing vaccine agenda. Chronic relapsing Lyme disease does not fit the vaccine model as efforts to maintain the restrictive definition and one size fits all treatment guideline have been ongoing for three decades.

Until those responsible for the mishandling of Lyme disease are removed from their positions of influence your constituents will continue to encounter denial of treatment, insurance reimbursement, disability and death.

It is time to stop turning a blind eye to the blatantly obvious misinformation campaign orchestrated by the CDC, IDSA and ALDF as 20,658 petitioners across America (and the globe) are calling for a congressional investigation of the deliberate mishandling of Lyme disease.

Petition: Calling for a Congressional investigation of the CDC, IDSA and ALDF
https://www.change.org/petitions/the-u-s-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf

We are witnessing one of the most shameful episodes in the history of medicine as those responsible for the disinformation operate as if they have immunity from examination because of the office they hold. It is time to recognize chronic Lyme Borreliosis and focus on understanding the disease process while creating effective treatment for persistent infection.

Respectfully Submitted,

Carl Tuttle
Hudson, NH 03051

Please continue to forward this petition to educate others
Petition: Calling for a Congressional investigation of the CDC, IDSA and ALDF
https://www.change.org/petitions/the-u-s-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf